Data and privacy
If you choose to take part in prenatal screening, Your care providers will keep your data from the screening tests in your medical records. The data is needed to properly carry out the screening tests and any follow-up tests. Some data may also be used for quality control, monitoring, and evaluation. By participating in the screening tests, you consent to this data processing.
What data is stored?
The long talk with the midwife (counseling)
- Your name, date of birth, address, and contact details.
- Gestational age (duration of pregnancy) when you have your talk with the midwife.
- Date of the talk.
If you decide to have prenatal screening and which screening tests you do or do not choose to have.
Non-invasive prenatal testing (NIPT)
- Your name, date of birth, address, and contact details.
- Some information about your pregnancy (due date, how many babies you are carrying).
- Gestational age at the time of the blood draw.
- Medical particulars.
- Location and date of the blood draw.
- Results of the NIPT.
The 20-week ultrasound
- Your name, date of birth, address, and contact details.
- Some information about your pregnancy (due date, how many babies you are carrying).
- Gestational age at the time of the 20-week ultrasound.
- Date of the 20-week ultrasound.
- Results of the 20-week ultrasound.
Who can access my data?
The people who need your data to provide you with good care can access your data. These may include: your own midwife, gynecologist, ultrasound technician, the people at the blood collection center and/or the laboratory, and the people who work with your healthcare providers or are their substitutes. They can only access the data necessary for providing care.
The National Institute for Public Health and the Environment (RIVM) collects general data for monitoring and evaluating the prenatal screening program. The general data cannot usually be traced to any one person.
How long is data stored?
Data is stored in the medical records of the healthcare providers (midwife, blood collection organization, laboratory) that were involved in the screening tests. The data retention period is 20 years.
Any blood remaining after testing in the NIPT laboratory is stored for 1 year for the purpose of quality control of the tests.